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2451 Crystal Drive, Suite 900, Arlington, VA 22202
Provides information and resources related to diabetes.
Helplines and Information, Public Education and Information
7240 Parkway Drive, Suite 180, Hanover, MD 21076
Offers information, educational materials, and resources related to sickle cell disease.
Public Education and Information, Helplines and Information
More information:
- Helps individuals create local chapters
- Supports research activities for new treatments and to find a cure
- Organizes and participates in national and regional educational conferences
120 Longwater Drive, Suite 105, Norwell, MA 02061
Educates the public on rare diseases and refers patients to resources for assistance and support.
Helplines and Information, Public Education and Information
3540 Crain Highway, Bowie, MD 20716
Provides trained information specialists to answer questions about epilepsy and seizures.
Helplines and Information, Public Education and Information
More information:
- provides support, guidance, and referrals to national and local resources
- Assists individuals living with epilepsy, their caregivers and friends, and anyone interested in learning more
18 Tremont Street, Suite 308, Boston, MA 02108
Provides information, referrals, and support for individuals living with obsessive compulsive disorder (OCD), hoarding, and body dysmorphic disorder.
Helplines and Information, Public Education and Information
More information:
- Information available on the website, by mail, in quarterly newsletters, and other materials
- Funds research to better understand these disorders
- Holds annual conferences
1016 West Jackson Boulevard, Suite 1073, Chicago, IL 60607
Offers centralized information and resource for individuals with neuromuscular diseases.
Helplines and Information, Public Education and Information
More information:
- Includes information on clinical trials, Care Centers, programs, research, advocacy, referrals, and more
5601 Fishers Lane, Rockville, MD 20852
Offers information on HIV and AIDS research, treatment, and clinical trials.
Public Education and Information, Helplines and Information
More information:
- Provides copies of federally approved treatment guidelines and information by mail
9000 Rockville Pike, Bethesda, MD 20892
Provides information on cancer, including research, clinical trials, prevention, risk factors, symptoms, early detection, diagnosis, treatment, and quitting smoking.
Public Education and Information
42-40 Bell Boulevard, Suite 205, Baltimore, MD 21214
Provides education, support, and referrals for individuals with Tourette Syndrome.
Public Education and Information, Support Groups
More information:
- Includes meetings, referrals, literature, films, treatment, and research
- Provides presentations for organizations upon request
7901 Jones Branch Drive, Suite 240, Mc Lean, VA 22102
Provides food allergy information, education, and referrals.
Helplines and Information, Public Education and Information
30 East 33rd Street, New York, NY 10016
Provides support, education, information, and referrals on kidney disease, organ donation, or transplantation.
Helplines and Information, Public Education and Information
More information:
- Offers tailored education programs on every stage of kidney disease and the transplantation process
- Hosts periodic seminars on kidney research and treatment in the National Capital Region
505 Eighth Avenue, Suite 1402, New York, NY 10018
Provides information and education on Huntington's disease and the hospitals and doctors that specialize in its treatment.
Public Education and Information
More information:
- Offers referrals to resources, clinical care and services, community and social support, and more
- A disability attorney is available for consultation
1350 Broadway, Suite 1530, New York, NY 10018
Offers information, education, support, and referrals on Parkinson's disease.
Helplines and Information, Public Education and Information
More information:
- Answers questions about Parkinson's diagnosis, treatment, daily living, caregiver concerns, research, and more
- Provides referrals to health professions and local community resources
- Offers customized information packs, digit and print versions
1829 Reisterstown Road, Suite 350, Pikesville, MD 21208
Provides information, resources, and support related to dyslexia and reading challenges.
Helplines and Information, Public Education and Information
More information:
- Offers educational materials for families and educators
- Provides guidance on effective reading instruction
- Refers individuals to trained professionals
- Offers teacher training, certification, and accreditation programs
- Provides community education, publications, and events to support literacy
500 West Madison Street, Suite 1000, Chicago, IL 60661
Provides education, information, and resources on mood disorders like depression and bipolar.
Helplines and Information, Public Education and Information
More information:
- Includes treatment and support options
13 Class Court, Suite 200, Parkville, MD 21234
Provides information about hemophilia and other bleeding disorders.
Public Education and Information, Helplines and Information
More information:
- Includes information on support groups
733 Third Avenue, New York, NY 10017
Provides information and referral services related to inflammatory bowel diseases.
Helplines and Information, Public Education and Information
More information:
- Distributes printed materials on colitis, Crohn's disease, ulcerative colitis, and related conditions
- Coordinates an annual nutrition expo and community walk
- Hosts seminars featuring speakers on medical, psychological, and nutritional topics
- Offers support groups for patients and their families
1201 15th Street Northwest, Suite 410, Washington, DC 20053
Operates a helpline staffed by healthcare professionals that provides information and support on blood cancers and diseases.
Helplines and Information, Public Education and Information
More information:
- Provides resources on terminology, diagnosis, treatments, research, coping with illness, and patient service programs
6925 Oakland Mill Road, Columbia, MD 21045
Provides information and referral services related to retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome.
Helplines and Information, Public Education and Information
More information:
- Offers an e-newsletter on coping strategies, research updates, and Foundation news
- Hosts a bi-annual national conference